More Than a Diagnosis: A Mum’s Fragile X Story

In this week’s episode of the Now and the Future Podcast – More Than a Diagnosis: A Mum’s Fragile X Story - we meet Mandy Barker, a Brisbane-based advocate and mother of two children with Fragile X syndrome.

During this discussion, Mandy shares her personal journey of living with Fragile X syndrome, the challenges faced by parents of children with intellectual disabilities, and some of the methods she has used to find balance and happiness.

For more information about Fragile X syndrome and other intellectual disabilities contact Fragile X Association of Australia (FXAA) or Down Syndrome & Intellection Disabilities Queensland (DSIDQ):

Fragile X Association of Australia (FXAA):

Web - https://www.fragilex.org.au/

Phone: 1300 394 636

Email: support@fragilex.org.au

Down Syndrome & Intellection Disabilities Queensland (DSIDQ)

Website – https://www.downsyndrome.org.au/qld/

Phone: (07) 3356 6655

Email: office@dsidq.org.au

Disclaimer: This episode is for general information only and does not constitute professional advice. Please seek independent advice relevant to your circumstances.

https://www.downsyndrome.org.au/wp-content/uploads/2026/04/Disclaimer.pdf